About Us

your experience provides valuable insights about living with lung cancer

Our Purpose

The Lung Cancer Registry, created by GO2 for Lung Cancer, is a worldwide online database started in 2016 so that people living with lung cancer, their loved ones, and those at risk could share their experiences through secure, easy-to-complete surveys. 

For people living with lung cancer and their caregivers, these surveys ask about medical history and diagnosis, treatments, outcomes, and quality of life. 

There are also surveys for people who haven’t been diagnosed with lung cancer but may be at higher risk due to 1 or more of the following: 

  • Certain work histories (Veterans, miners, firefighters) 
  • A family history of lung cancer (a relative diagnosed with lung cancer) 
  • Exposure to harmful environmental factors, such as dust from 9/11 or radon 
  • Other lung conditions, such as COPD or pulmonary fibrosis 
  • Past or current use of tobacco products 

The knowledge and experience you share in these surveys can help deepen our understanding of lung cancer.

Why join the Lung Cancer Registry?

Be part of a global community of patients, survivors, caregivers, and researchers.

Help make the search for new and better treatments faster and contribute to studies that may help find a cure for lung cancer.

Explore data* from others to see how your experience compares to theirs.

Use the Lung Cancer Registry to organize your care by securely uploading test results and medical records (optional).

Receive updates about new Registry studies, clinical trials, and research publications by opting in to our communications. 

committed to security

We value your privacy.

The information you share with the Registry is completely secure. You can decide who can see your data, how it will be used, and if you wish to be contacted by Registry staff. Data shared with other Registry members is completely anonymous, and personal identities are never revealed.  

GO2 for Lung Cancer logo

GO2 for Lung Cancer powers the Lung Cancer Registry and relentlessly confronts lung cancer on every front, every day, for everyone. As the nation’s leading lung cancer advocacy organization that was founded by patients and survivors, we are dedicated to increasing survival for those at risk, diagnosed, and living with lung cancer.