Researchers
Researchers may apply to access de–identified Registry data or contact the Registry team to coordinate possibly creating a new survey for inclusion in the Lung Cancer Registry.
A window into real-world lung cancer data
The Lung Cancer Registry offers researchers and healthcare professionals a window into real-world lung cancer data.
People living with lung cancer, survivors, caregivers, and those at risk for lung cancer, offer their experiences with diagnosis, biomarkers, treatment, side-effects, quality of life, and other survivorship issues over time.
This format allows researchers to move beyond clinical trials and see trends as they are happening. Researchers can save their searches, making it easy to return to specific data and run reports.
Frequently asked questions
Who is considered a researcher?
Researchers may include, but are not limited to, academic or nonprofit researchers, as well as companies conducting retrospective studies. Retrospective studies analyze data collected after the fact, often from individuals who participated in previous research or clinical trials of new therapies.
Is there a fee for researchers to access the data in the Registry?
A service fee for research-related costs may apply and will be determined upon approval of the application.
Can studies in the registry be IRB reviewed and approved?
All Registry research surveys are IRB-approved, and all required consents are collected within the Registry.
Researchers conducting their own studies can be granted IRB waivers under Non-Human Subject Research guidelines, and studies can be done in the Registry that do not go through IRB approval. When you apply, you must state whether you will seek IRB approval.
How can I search and view the data?
Please contact registry@go2.org for more information about working with Lung Cancer Registry data.
What are the terms and conditions for using the Registry data?
Any use of the online platform is subject to the Lung Cancer Registry Terms and Conditions and the Professional Access Terms and Conditions. In addition, any publications or presentations based on Registry data must include appropriate acknowledgment. If you have any questions regarding these points, please contact the Registry team.
How do I submit a proposal for including a survey in the Registry?
Proposal requests start with a discussion with Registry staff. Email registry@go2.org for more information.
