Surveys
Learn more about research studies available through the Lung Cancer Registry.
Share your lung cancer experience
People living with lung cancer, caregivers, and people who are at risk of developing lung cancer can share their experiences by completing our surveys.
For those living with lung cancer or caregivers, our baseline surveys ask questions about your medical history, lung cancer diagnosis, treatments, how you are doing, and quality of life.
Participants may also be asked to complete a short follow-up survey every 3 months. Repeating surveys every few months, also known as a longitudinal study, helps researchers see a bigger picture of your lung cancer experience. It also helps doctors and people with lung cancer look at their care over time.
Lung Cancer Registry research studies
Below is a list of studies currently available on the Registry. You can view your completed surveys by logging into your account and going to “surveys.” Choose “view” to see a list of all the surveys that you completed.
Individuals who complete some special surveys may be compensated for completion by Amazon or Visa gift card. Contact registry@go2.org to learn more.
Dummy Item to Prevent First One Open
Your content goes here. Edit or remove this text inline or in the module Content settings. You can also style every aspect of this content in the module Design settings and even apply custom CSS to this text in the module Advanced settings.
Lung Cancer Patient Study
This is an ongoing study for people with lung cancer. It includes questions about a person’s health history, lung cancer diagnosis, treatments, how they are doing, and quality of life.
After finishing the first set of surveys, participants are asked to complete shorter surveys every few months.
The purpose is to understand the lung cancer patient’s experience over a period of time and try to understand any changes that might have happened.
- Who can join: Someone who is older than 18 years of age diagnosed with lung cancer, or a caregiver of a person that has been diagnosed with lung cancer (living or has passed away).
- Estimated time to complete: About 20 minutes
Lung Cancer Risk Survey
The Lung Cancer Risk Survey is looking to understand who might have a higher risk of developing lung cancer. The survey asks many questions about the environment where a person was raised as well as their lifestyle. By answering these questions, researchers hope to find patterns in order to diagnose lung cancer earlier.
The Risk Survey involves completing 4 shorter survey modules. The modules include questions about a person and their family’s medical history, diet and nutrition, physical activity, smoking history, work history as well as the environment that the person grew up in.
Who can join: To join the Lung Cancer Risk Survey, you must be 18 years old and older, AND at least one of the following:
- Use or used to use tobacco products
- Have a family history of lung cancer
- Worked in jobs with poor air quality (military, firefighters, miners)
- Been exposed to radon
- Have another lung disease (COPD, Pulmonary Fibrosis)
- Been exposed to major air pollution events (9/11 World Trade Center, wildfires)
Estimated time to complete: About 5-10 minutes per survey module.
Lung Cancer Risk Survey working group:
- Andrew Ciupek, PhD, GO2 for Lung Cancer
- Elise Domico, Patient Advocate
- Jeffrey Volotta, MD, FACS, Kaiser Permanente Oakland Medical Center
- Jody Ruth Steinhardt, MPH, CHES, NYC Health & Hospitals
- Julie Herbstman, PhD, ScM, Columbia University Mailman School of Public Health
Caregiver Survey
The Caregiver Survey is for people anywhere in the world who help take care of someone with lung cancer. The survey asks about the caregivers’ needs, the support they receive, and the challenges they face, both emotionally and socially.
The survey also looks at how being a caregiver affects their daily life and well-being. Follow-up caregiver surveys are offered every 6 months to help track how the caregiver’s experience changes over time.
Who can join: To join the Caregiver Survey, you must:
- Be 18 years old and older
- Are a caregiver of someone with lung cancer (living or passed away). For this study, caregivers are:
-
- People who help a family member or friend who has been diagnosed with lung cancer.
- People who are not paid for the help they provide.
- People who help with health care and daily tasks. This includes people who help manage medicines, track symptoms, or arrange doctor visits. It can also include help with shopping, cooking, cleaning, or home repairs.
- Parents, children, spouses, partners, or friends.
Estimated time to complete: About 20 minutes
Caregiver Survey working group:
- Andrew Cuipek, PhD, GO2 for Lung Cancer
- Anne-Marie Baird, PhD, Trinity College Dublin
- Jacinta Wiens, PhD, MS, Merck
- Jamie Studts, PhD, University of Colorado Anschutz Medical Campus
- Joelle Fathi, DNP, RN, ARNP, ANP-BC, CTTS, GO2 for Lung Cancer
- Kent Smith, BS, MBA, University of Washington School of Nursing
- Kristin Richeimer, BS, Council of Colleges of Acupuncture and Herbal Medicine
- Maureen Rigney, LICSW, GO2 for Lung Cancer
- Nick Dionne-Odom, PhD, RN, ACHPN, FPCN, FAAN, University of Alabama at Birmingham School of Nursing
- Roslyn Spruit, Committee Member
- Tara Bowman, O’Neal Comprehensive Cancer Center at UAB
To participate in one of our studies simply join the Lung Cancer Registry
