Finding connections.
Finding answers.
Each person’s lung cancer story is unique, but there is a common thread among those diagnosed that will inspire research innovations and transform survival.
What Drives Us
By sharing your lung cancer experience, you can help researchers uncover how each cancer is unique and find new ways to improve quality of life during and after treatment.
These findings help doctors identify patterns that improve care for everyone.
The Lung Cancer Registry isn’t just for people with lung cancer or loved ones of people with lung cancer - it also includes people at higher risk – such as those with a history of tobacco use, lung disease, or environmental exposures (such as 9/11 dust, radon, or wildfire smoke).
The more we learn about people’s daily lives and potential exposures, the better we can guide smarter screening and early detection, which may help people live longer, healthier lives.
How it works
Step 1
Register for a free and secure account in about 5 minutes.
Step 2
Share your experience by completing surveys ranging from 5-20 minutes.
Step 3
We find connections, trends, and clues to help answer big research questions.
Step 4
Research is published, care is advanced, and more lung cancer survivors live longer and better lives.
Beyond research
When you join the Lung Cancer Registry, you’re not just providing data that fuels innovation in research and new therapies – you’re doing even more. You are helping caregivers and family members of survivors feel more empowered and vital to care. You are helping other survivors just like you find the connections that they need each and every day. And you are helping your doctor drive your care in the most effective way possible.
By participating in the international Lung Cancer Registry, you are taking those hidden connections and turning them into answers to important questions. You are helping to improve care for every single person with lung cancer, including yourself.
Data leads to answers
Answers lead to new
and better treatments
Improved treatments lead
to longer, better lives
More participants, more survivors
The medical data from more than 2,500 patients and survivors from around the world has been compiled into one rapidly expanding database. Researchers and clinicians from all specialties in lung cancer—medical oncology, surgery, radiation, drug development, and quality care improvement—can access de-identified data that maintains individual patient privacy.
Every person with lung cancer will, at some point, think about what his or her legacy will be. Let part of your legacy be contributions to the science of lung cancer.
Private & Secure
Your data is confidential and protected.
Give hope, get hope
We are here to help.
By sharing your lung cancer experience every few months, you are opening the door to opportunity, for others and for yourself. We will share any interesting findings or published work with our members, plus we are just a call or email away to help with your individual cancer experience.
Not ready to join?
Sign up for Lung Cancer Registry updates
access our data
Lung cancer researchers
We are excited to share deidentified data from the Lung Cancer Registry with the research community. We also work with researchers to survey our Registry members.
