Who Can Participate?
Any person older than age 18 diagnosed or at risk for lung cancer, regardless of stage of disease or type of lung cancer, or a caregiver of a person with lung cancer (living or deceased) can participate in the Lung Cancer Registry.
Data can be input directly in the Lung Cancer Registry by a patient, survivor or caregiver that has been granted access to the patient’s medical records, such as a spouse, child, relative or friend.
Are you…
What Do I Have to Do and How Long Will It Take?
Any person older than age 18 diagnosed or at risk for lung cancer or a caregiver of a person with lung cancer (living or deceased) can participate in the Lung Cancer Registry.
Data can be input directly in the Lung Cancer Registry by a patient, survivor or caregiver that has been granted access to the patient’s medical records, such as a spouse, child, relative or friend.

Surveys do not need to be completed in one sitting.
Tips for Quick and Complete Surveys
Dummy Item
Have your medical records organized by date and within arm’s reach.
The Registry allows you to upload and store pictures of scans, medical records, or documents for easy repeat access, like a virtual filing cabinet. You can also see your previous surveys on your profile under “my impact” for reference.
Regardless of how you store and organize your records, be sure to note what has been entered into the Registry and when. There will be times when you aren’t sure what was noted in the last survey or when a change to your therapy or an off-schedule scan can add confusion about your cancer care timeline. Making notes in your records as you input them helps manage confusion.
Know your biomarkers.
Comprehensive biomarker testing (such as a lung cancer-specific mutation panel or next-generation sequencing, NGS) is an important part of your diagnosis and treatment. Certain gene changes, such as those in the EGFR, ALK, RET, MET, and KRAS genes, or other biomarkers, such as PD-L1, can affect how well your cancer responds to a given therapy.
Be very specific about which treatments you are receiving.
“Chemo” and “immunotherapy” are just labels for the types of drugs you have been prescribed; they are not a drug by themselves. Different types of therapy can even include a mix of drugs – like “chemoimmunotherapy.”
Be prepared to repeat yourself.
Unfortunately, doctors, researchers, and even the Lung Cancer Registry ask some of the same questions at different time intervals. There will be times that this feels tedious—we’re sorry. Repetition is, unfortunately, necessary for scientific standards.
Ask for help.
If at any time, you are confused by the information presented in a survey or you are unsure about how to enter your data, we are here to help. Contact registry@go2.org.
If you have questions about your diagnosis or treatment, want to connect with other lung cancer survivors, or are just feeling overwhelmed by your lung cancer experience and want to talk, we are here to help.
The GO2 HelpLine team members are available Monday – Friday, 9:00 am to 5:00 pm (ET). Contact a compassionate and skilled team member today.
1-800-298-2436
support@go2.org